20 life lessons I have learned over the course of the last decade. In the last 10 years, I have been through it all. I have learned closely and painfully how precious life is. I have learned that life isn’t easy when you are healthy and is much more difficult with a chronic illness but following Christ allows you to see the lit path before you. Today, 10 years ago, I went states away following the lit path to have a surgery that was my only hope outside of christ performing a miracle. 10 years later to the day I look back to see that that surgery was my miracle. This was also a life event that changed everything about who I am, who I am going forward, who my friends and family are to me. and now we are a decade out. chronically ill, total pancreatectomy with auto islet cell transplant, pancreatitis, type 3c diabetes, diabetic life, chronic pain, neuropathic, neuropathy, migraine, narcolepsy, cataplexy, insomnia, obstructive sleep apnea, anxiety, depression, splenectomy, appendectomy, surgery, hospitals, doctors, ready to be heard, feelings are validated, validation of pain, friend who understand , family understands

Event planning is one of my all time favorite passions and hobbies. This is how I planned my best friend baby’s shower and this is when I realized that event planning is something that i love. I love the details, I love the meaning, I love that it makes someone feel loved and cared for. I didn’t realize that event planning was such a labor of love and once I did it myself; I cant go back.

When I became chronically ill something changed that I never expected. It was how I planned my life. Not in the way you may be thinking in the sense of what I want to do and how to do it. It changed in the sense of how I planned trips and events. I had to plan rest days. I didn’t used to have to plan for my body to be unable to function for days after a trip or event. I eventually started calling it my 3-5 business day recovery plan. I thought I would share this with you in hopes that you and your loved ones may be able to understand each other better. As well as, maybe gibing you a new tip or trick to make life more manageable so you can feel like you are thriving not simply surviving.

I am tired. Tired means so many things. It can mean I need a nap, it can mean im worn out from that specific thing, it can mean im exhausted from life. When a friend with a chronic illness tells you they are tired; they are telling you they are tired of fighting to live. They are tired of fighting doctors to get the treatment they need a deserve. They are worn out. No one wants to fight as much as we do especially when you feel as sick as we do. It is exhausting. So lately if you ask me how I am… Im just tired.

I had always been told that sleep apnea had a certain criteria that had to be met. You either were overweight, you were older, you had huge boobs, you had other breathing issues, you snored way too much. I didn’t know that it was something that can happen to anyone and those criteria I thought I knew are just a stereotype from the olden days when they didnt know what sleep apnea really was. Come alone with me as a 25 year old figures out what the world of sleep apnea is like and how to survive it.