20 Life lessons in a decade
20 life lessons I have learned over the course of the last decade. In the last 10 years, I have been through it all. I have learned closely and painfully how precious life is. I have learned that life isn’t easy when you are healthy and is much more difficult with a chronic illness but following Christ allows you to see the lit path before you. Today, 10 years ago, I went states away following the lit path to have a surgery that was my only hope outside of christ performing a miracle. 10 years later to the day I look back to see that that surgery was my miracle. This was also a life event that changed everything about who I am, who I am going forward, who my friends and family are to me. and now we are a decade out. chronically ill, total pancreatectomy with auto islet cell transplant, pancreatitis, type 3c diabetes, diabetic life, chronic pain, neuropathic, neuropathy, migraine, narcolepsy, cataplexy, insomnia, obstructive sleep apnea, anxiety, depression, splenectomy, appendectomy, surgery, hospitals, doctors, ready to be heard, feelings are validated, validation of pain, friend who understand , family understands
learning is essential
Never stop learning because there is so much to see and experience in the world. Whether you study plants, animals, travel, finances, it doesnt matter its always good for us to explore new things and learn how they fit into our lives. By learning these new things we are able to connect them with knowledge we currently have and grow on it. This is how we improve the world and respect others and how their knowledge makes them special.
Happy Independence Day
Fourth of July is an incredible summer holiday that’s deep meaning gets forgotten about often. Fourth of July, or Independence day is about freedom. Not simply, the freedom to speak freely, have a voice in our government, live our lives the way we want but in religion. So many sacrificed so that we could follow Jesus Christ. When we follow Christ we also have independence or freedom from this world and the hurts it causes. With God all things are possible. THis is a day of freedoms. Freedom of speech, freedom of religion, freedom from hurt.
My partner is a busy bee… How do I keep up?
My husband is someone who is always on the go. He loves having projects. He loves exploring the world around him. He loves building and creating things. He likes to be working on projects bt with my health I often cant keep up. I wanted to share my tips and tricks to meet in the middle so that you and your partner can still spend time together. Supporting each others hobbies and activities is important and vital to a successful relationship.
3-5 Business Days
When I became chronically ill something changed that I never expected. It was how I planned my life. Not in the way you may be thinking in the sense of what I want to do and how to do it. It changed in the sense of how I planned trips and events. I had to plan rest days. I didn’t used to have to plan for my body to be unable to function for days after a trip or event. I eventually started calling it my 3-5 business day recovery plan. I thought I would share this with you in hopes that you and your loved ones may be able to understand each other better. As well as, maybe gibing you a new tip or trick to make life more manageable so you can feel like you are thriving not simply surviving.
I am tired
I am tired. Tired means so many things. It can mean I need a nap, it can mean im worn out from that specific thing, it can mean im exhausted from life. When a friend with a chronic illness tells you they are tired; they are telling you they are tired of fighting to live. They are tired of fighting doctors to get the treatment they need a deserve. They are worn out. No one wants to fight as much as we do especially when you feel as sick as we do. It is exhausting. So lately if you ask me how I am… Im just tired.
What I have learned in my 26 years on this Earth.
Twenty six things that I have learned in my twenty six years of life. I wanted to share the things that I learned this past year as well as things that I have known but wish I implemented these things in more.
How to find a Doctor that respects you.
Finding a Doctor that respect you and listen to you is becoming more and more difficult. I have been able to create a somewhat successful process over the years and I want to share it with you. If this can help one of your appointments go a little better than it is all worth it. I lay out each step and how I go about finding the candidates. I then remind you that this is an interview for them. Doctor’s like to act like they are blessing you with their time but you are paying for them. Make sure you find someone who listens and respects you.