Shoes can Change Everything
Shoes are important to your quality of life. Especially if you are dealing with chronic pain that gets worse with impact pain. These are tried and true shoes that do not cause pain and can even help alleviate pain. These are a list of shoes from tennis shoes, slides, sandals and more that are all made with enough cushion to not cause pain.
20 Life lessons in a decade
20 life lessons I have learned over the course of the last decade. In the last 10 years, I have been through it all. I have learned closely and painfully how precious life is. I have learned that life isn’t easy when you are healthy and is much more difficult with a chronic illness but following Christ allows you to see the lit path before you. Today, 10 years ago, I went states away following the lit path to have a surgery that was my only hope outside of christ performing a miracle. 10 years later to the day I look back to see that that surgery was my miracle. This was also a life event that changed everything about who I am, who I am going forward, who my friends and family are to me. and now we are a decade out. chronically ill, total pancreatectomy with auto islet cell transplant, pancreatitis, type 3c diabetes, diabetic life, chronic pain, neuropathic, neuropathy, migraine, narcolepsy, cataplexy, insomnia, obstructive sleep apnea, anxiety, depression, splenectomy, appendectomy, surgery, hospitals, doctors, ready to be heard, feelings are validated, validation of pain, friend who understand , family understands
learning is essential
Never stop learning because there is so much to see and experience in the world. Whether you study plants, animals, travel, finances, it doesnt matter its always good for us to explore new things and learn how they fit into our lives. By learning these new things we are able to connect them with knowledge we currently have and grow on it. This is how we improve the world and respect others and how their knowledge makes them special.
My partner is a busy bee… How do I keep up?
My husband is someone who is always on the go. He loves having projects. He loves exploring the world around him. He loves building and creating things. He likes to be working on projects bt with my health I often cant keep up. I wanted to share my tips and tricks to meet in the middle so that you and your partner can still spend time together. Supporting each others hobbies and activities is important and vital to a successful relationship.
3-5 Business Days
When I became chronically ill something changed that I never expected. It was how I planned my life. Not in the way you may be thinking in the sense of what I want to do and how to do it. It changed in the sense of how I planned trips and events. I had to plan rest days. I didn’t used to have to plan for my body to be unable to function for days after a trip or event. I eventually started calling it my 3-5 business day recovery plan. I thought I would share this with you in hopes that you and your loved ones may be able to understand each other better. As well as, maybe gibing you a new tip or trick to make life more manageable so you can feel like you are thriving not simply surviving.
I am tired
I am tired. Tired means so many things. It can mean I need a nap, it can mean im worn out from that specific thing, it can mean im exhausted from life. When a friend with a chronic illness tells you they are tired; they are telling you they are tired of fighting to live. They are tired of fighting doctors to get the treatment they need a deserve. They are worn out. No one wants to fight as much as we do especially when you feel as sick as we do. It is exhausting. So lately if you ask me how I am… Im just tired.
What I have learned in my 26 years on this Earth.
Twenty six things that I have learned in my twenty six years of life. I wanted to share the things that I learned this past year as well as things that I have known but wish I implemented these things in more.
How to find a Doctor that respects you.
Finding a Doctor that respect you and listen to you is becoming more and more difficult. I have been able to create a somewhat successful process over the years and I want to share it with you. If this can help one of your appointments go a little better than it is all worth it. I lay out each step and how I go about finding the candidates. I then remind you that this is an interview for them. Doctor’s like to act like they are blessing you with their time but you are paying for them. Make sure you find someone who listens and respects you.
Packing for an International Trip
Packing for any trip when you are chronically ill can be a daunting task in it of itself. However, packing for a trip that is across an ocean and a 13-14 hour flight is a whole other level of difficulty. My goal in this post is to help you understand what to pack and how to successfully pack so that you don’t over pack but you have what you need. Packing for Israel was difficult but together we can achieve anything. This is a post that should help explain all that and be honest about it all. I hope this helps and look forward to hearing your thoughts.
Expect & Accept
I like to share the things I learn in therapy and one of the most recent things is “Expect & Accept”. I struggle when it comes with doing all I can to please those around me. I try to please them to a point where my own well being is no longer important. I focus so heavily on the other person whether or not their reaction or action was acceptable. This is something that I struggle with so much but we cant control people. We have to remember when people react we can prepare ourselves for this by excepting the possibilities and accepting that it is not our fault.
How to create a bedtime routine
Having any kind of routine is difficult when you are chronically sick and in pain. However, it is important to acknowledge tings that must be done as often as they can to ensure we get the most out of each thing we do. This is how I prepare for bed to do everything I can to get rest for the night.
Cleaning Tips & Tricks Pt. 2
Cleaning is a way I can help and feel like I have a party to play in our household. It can be hard to find your place when being a full time stay at home wide die to chronic illness. If I was healthy and able to be a stay at home wide I'm sure I would get so much more done and maybe not need these tricks but that is not the case and that is why I am so passionate with sharing my tricks because I don't want others to feel lost or useless. You are perfect the way you are.
Motto #1
What are your life mottos? What statements do you come back to when life is not going right? DON’T WORRY! I am sharing all of my tips and tricks for getting through life as someone who is chronically ill. These blog posts are for everyone though because whether you have a chronic illness or not you have had to face adversity at times. It is hard and it can be awful but hopefully with these tips it cane make life just a little more manageable. Assess, Adapt, Move on or in Michael’s case Overcome!
How Can I Help My Friend in a Flare
Flares are inevitable for people with chronic illnesses. We do our best to avoid them but they happen even when we do it all right. THey are usually temporary but that can mean as long as a few days to months. They can also have different levels of severity. This blog post is all about what to say, what to do, what not to say, and what not to do. Its straightforward and honest and I hope it helps!
BTS of B&W
The story of the friendship of Bailey & Willow. This is a 12+ year story in the making. We have been through things that people grow old without experiencing. We decided to open up and be as honest as we can with you all to help you understand who we are and how we relate to each other. Also, to remind you, you are never to far gone for God. I love you B!
Sleep Apnea… Really?
I had always been told that sleep apnea had a certain criteria that had to be met. You either were overweight, you were older, you had huge boobs, you had other breathing issues, you snored way too much. I didn’t know that it was something that can happen to anyone and those criteria I thought I knew are just a stereotype from the olden days when they didnt know what sleep apnea really was. Come alone with me as a 25 year old figures out what the world of sleep apnea is like and how to survive it.
Who is Who?
The hospital is its very own ecosystem, filled with unique species that all do differnet things. For example, you have attendings who make the decisions, you have the interns who are learning how to identify a health problem, you have x-ray techs who discover things that are hard to find, and you have nurses who will do everything they can to help you make it through this hard time. It is complicated but once you get an idea of how it works you understand why it is this way.
Goals.
Goals. We all have them. Some of us may not have taken the time to sit down and realize what they are but if they did they would realize they do. This is all about the goals on the about page that I wanted to be a group experience. It is hard to complete things but working as a team can change the situation entirely. I want to achieve these goals together so leave your thoughts in the comments
What is a.. Stay At Home Wife (SAHW)
What is a stay at home…wife? Is that even okay? How do you manage emotions with that title? Is this something you always wanted or knew you wanted? What does this mean to you and mike?
Service Dog Basic Info
Service Dogs. Lately, people have started making it difficult to trust whether they have a truly trained service dog or if it is a regular untrained dog that helps with anxiety. This post is all about the differences and what qualifications are needed. It is also about what things are required and what are not. I hope this helps make this journey easier for at least one person out there!